Coming Soon!

The Health Experiences Research Network is currently working on the following modules:

Hereditary Cancer Risk or Cancer, and Genetics
The goal of this project is to develop a deeper understanding of people’s experiences with hereditary cancer risk or hereditary cancer, and genetics. The study will include peoples’ experiences with genetic testing, sharing information about risk with family members, making decisions about prophylactic surgery and other interventions. We will interview people with hereditary colorectal cancer or breast cancer, and people with genetic conditions that predispose individuals to these cancers (e.g. Lynch Syndrome and BRCA). We anticipate that our module will be completed and on the website in 2019.

Pediatric Cancer
In this research, we will interview parents of children with a history of cancer to better understand families’ experiences with childhood cancer. We anticipate that our module will be completed and on the website in 2019.

Breast Cancer
The aim of our research is to develop a deeper understanding of people’s’ experiences with breast cancer. This module will include peoples’ experiences with diagnosis and treatment, accessing care, and the impact their illness has had on their identities, sense of spirituality, and life. We anticipate that our module will be completed and on the website in early 2020.

Gulf War Syndrome
Our research seeks to better understand Gulf War Veterans’ experiences with Gulf War Syndrome. We anticipate that our module will be completed and on the website in 2021.

Gulf War Veterans’ Health Experiences
The aim of our research is to better understand Gulf War Veterans’ experiences with health and healthcare. We anticipate that our module will be completed and on the website in 2021.

healthexperiencesusa.org
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