Resources and Information
American Cancer Society – Cancer-Related Expenses
This site from American Cancer Society outlines programs and resources to help individuals and families with cancer-related expenses.
American Cancer Society – Genetic Testing
This site provides general information on Understanding Genetic Testing for Cancer: Genetics, gene mutations, and cancer rise, including who should have genetic testing.
Colorectal Cancer Alliance
The Colorectal Cancer Alliance provides a support community for individuals and their families with Lynch syndrome and Familial Adenomatous Polyposis.
Consumer Reports – Guide to Health Insurance
This site can assist you with understanding insurance, covering topics from choosing a health insurance plan to avoiding surprise medical bills.
Facing Our Risk of Cancer Empowered (FORCE)
FORCE focuses on improving the lives of individuals and families affected by hereditary cancers, focusing on hereditary breast, ovarian, and related cancers. FORCE’s site provides a wide array of resources and programs personalized to people for their situation.
Food and Drug Administration (FDA) – Direct-to-Consumer Testing
Visit this site for more information on Direct-to-Consumer Tests, authorized by the FDA for accuracy and reliability as well as comprehension.
Kintalk is an educational site for individuals and their families with hereditary cancers, developed by Genetic counselors at University of California, San Francisco. Kintalk – Empowering Families with Hereditary Cancers Through Communication and Education.
Medicare.gov – Pharmaceutical Assistance Program
Medicare.gov, the official site for Medicare, has a Pharmaceutical Assistance Program resource page where you can learn more about assistance programs offered by pharmaceutical companies for the drugs they offer.
National Cancer Institute at NIH – Tumor Testing
The National Cancer Institute at NIH provides resources on clinical tumor DNA sequencing, which can help determine if tumor testing is right for you and which treatment plans might make sense.
National Colorectal Cancer Roundtable – Risk Assessment and Screening Toolkit
Established by the American Cancer Society and the Centers for Disease Control and prevention, the National Colorectal Cancer Roundtable focuses on increasing the use of proven colorectal cancer screening tests. Under the resources section, they have a great toolkit entitled, “Risk Assessment and Screening Toolkit to Detect Familial, Hereditary, and Early Onset Colorectal Cancer.”
National Comprehensive Cancer Network
The National Comprehensive Care Network is a non-for-profit network of comprehensive cancer centers across the United States. The NCCN site provides clinical practice guidelines as well as resources to help people with cancer understand their diagnosis and treatment options.
National Human Genome Research Institute (NHGRI) – About Genomics
National Society of Genetic Counselors
The National Society of Genetic Counselors (NSGC) provides a network for professional communications around genetic counseling, focused on ensuring the availability of high-quality genetic services for all.
One FAP Voice
One FAP (Familial Adenomatous Polyposis) Voice provides a community for individuals and families with Familial Adenomatous Polyposis, ranging from connecting with others and finding expert providers to staying up to date on the latest research.
USA.gov – Government Health Insurance
This site is the official guide to Government health insurance, including Medicaid and Medicare, and provides resources on paying for medical bills.