Catalyst Film References


Bate, S.P., & Robert, G. (2007). Bringing user experience to healthcare improvement: the concepts, methods and practices of experience-based design. Oxford: Radcliffe Publishing.

Caplan, W., Davis, S., Kraft, S., Berkson, S., Gaines, M., Schwab, W., & Pandhi, N. (2014). Engaging patients at the front lines of primary care redesign: operational lessons for an effective program. The Joint Commission Journal on Quality and Patient Safety40(12), 533-540.

Dimopoulos-Bick, T., Dawda, P., Maher, L., Verma, R., & Palmer, V. (2018). Experience-based co-design: tackling common challenges. The Journal of Health Design3(1).

Donetto S, Tsianakas V, Robert G. Using Experience-based Co-design (EBCD) to improve the quality of healthcare: mapping where we are now and establishing future directions. London: King’s College London. 2014 Mar.

Johnson, B., Abraham, M., Conway, J., Simmons, L., Edgman-Levitan, S., Sodomka, P., Schlucter, J., & Ford, D. (2008). Partnering with patients and families to design a patient- and family-centered health care system: Recommendations and promising practices. Bethesda, MD: Institute for Patient- and Family-Centered Care. Retrieved from

Locock, L., Robert, G., Boaz, A., Vougioukalou, S., Shuldham, C., Fielden, J., ... & Pearcey, J. (2014a). Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement. Health Services and Delivery Research2(4).

Locock, L., Robert, G., Boaz, A., Vougioukalou, S., Shuldham, C., Fielden, J., ... & Pearcey, J. (2014b). Using a national archive of patient experience narratives to promote local patient-centered quality improvement: an ethnographic process evaluation of ‘accelerated’ experience-based co-design. Journal of Health Services Research & Policy19(4), 200-207.

Nembhard, I. Organizational Culture: Driving performance in health care, November, 22, 2016. Presentation.  On file with the author.

Neuwirth EB, Bellows J, Jackson AH, Price PM. How Kaiser Permanente uses video ethnography of patients for quality improvement, such as in shaping better care transitions. Health Affairs. 2012 Jun 1;31(6):1244-50.

Point of Care Foundation, Case study 4: Using archive film to develop an accelerated form of EBCD. Available at:

Raynor, D. K., Ismail, H., Blenkinsopp, A., Fylan, B., Armitage, G., & Silcock, J. (2020). Experience‐based co‐design—Adapting the method for a researcher‐initiated study in a multi‐site setting. Health Expectations.

Repper, J., & Breeze, J. (2007). User and carer involvement in the training and education of health professionals: a review of the literature. International journal of nursing studies44(3), 511-519.

Robert, G. (2013). Participatory action research: using experience-based co-design to improve the quality of healthcare services. Understanding and Using Health Experiences–improving patient care.

Ziebland, S., Coulter, A., Calabrese, J. D., & Locock, L. (Eds.). (2013). Understanding and using health experiences: improving patient care. OUP Oxford.

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