YOUNG ADULTS’ EXPERIENCES WITH DEPRESSION

ABOUT THE FILM

The Young Adults’ Experiences With Depression Catalyst Film was created from existing footage from the Young Adults with Depression module on HealthExperiencesUSA.org and additional interviews conducted in early Spring 2019 and February 2020. The film can be viewed in a group setting or by individuals.To make the film as easy to use and implement as possible, we have provided a Guidebook along with the film, including Worksheets and Resources.

  • Guidebook: The guidebook provides context and an introduction to the use of catalyst films for various activities. It situates catalyst films with other co-design and patient engagement methods and highlights the value of catalyst films according to various audiences. It provides practical guidance on how the films can be used
  • Worksheets: The Guidebook Appendix contains sample Agendas for Film Viewing, and Handouts for individual and group reflection.
  • Resources: The Guidebook Appendix also contains links to additional resources on: Quality improvement (QI), Patient engagement for QI, Experience-Based Co-Design, and other Participatory Visual Methods.

DOWNLOAD THE GUIDEBOOK

In constructing the film and guidebook, we have endeavored to follow best practices that can facilitate ease of implementation. As such, we created individual films with different foci and length, and offer scripts; discussion guides; and implementation ideas. This approach is designed to make the intervention ready to be tested on a small scale and then adapted to your context as needed.

WATCH THE FILM

RESPONSE TO THE FILM

During 2019, we held focus groups with clinicians and clinic staff in Madison, WI and Albuquerque, NM. Perspectives voiced in these groups aligned with what has been reported in other studies, including that viewing the film: ‘keep[s] the engine of motivation going’; ‘pulls people into the project’; is ‘a very powerful reminder of why we are doing what we do’; a ‘very moving, a vivid reminder of patient experiences’, and a ‘resoundingly powerful look into individuals’ lives and experiences with illness’. (Bate 2007, Donetto, 2014) Overall, the staff involved in these film screenings remarked on the value of the patient films as giving them access to a new way of understanding the experiences of patients. They found the positive and negative feedback on practices “compelling,” and indicated that the film led to “compassion and more understanding” for patients.

We also asked patient ambassadors - those patients who had been interviewed for the HealthexperiencesUSA module on Young Adults with Depression and helped us spread the word about the resource - what they thought of the idea of catalyst films. One Ambassador remarked, “I think it’s a good way to remind... health professionals of the severity [and] novelty of this process [of seeking treatment] for some people.”  Another noted, “The key is authenticity...that [the film] is directly conveying what the participants have said, not trying to put it into any sort of narrative or message.”

 

Watch individual sections of the catalyst film below:

Young Adults’ Experiences with Depression: Depression is Multifaceted

Young Adults’ Experiences with Depression: Stigma

Young Adults’ Experiences with Depression: Experiences of Patient-Centered Care and Coordination

Young Adults’ Experiences with Depression - Medication

Young Adults’ Experiences with Depression: Therapy

Young Adults’ Experiences with Depression: What Patients Want from Providers

TOOLKIT DEVELOPMENT

The Young Adults’ Experiences with Depression Catalyst Film and the Patient Experiences Catalyst Film Guidebook was developed by researchers and clinicians at the Center for Patient Partnerships, the University of Wisconsin-Madison Department of Family Medicine and Community Health, School of Medicine & Public Health, and University of New Mexico School of Medicine, Family & Community Medicine.

The guidebook is informed by an extensive literature review and focus group and individual discussions with clinicians, staff, health care leaders, researchers, and patients who have participated in patient experiences interviews.  The film was created from existing footage from the Young Adults with Depression module on HealthExperiencesUSA.org and additional interviews conducted in early Spring 2019 and February 2020.

We were supported in this work by the University of Wisconsin-Madison’s Clinical and Translational Science Award program, through the National Institute of Health National Center for Advancing Translational Sciences, with grant UL1TR002372. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health or other funders.

Please send questions, comments and suggestions to: Sarah.Davis@wisc.edu

ACKNOWLEDGEMENTS 

The authors would like to acknowledge the contributions of the participants and patient experience ambassadors: Brendan, Elizabeth, Njeri, Jacob, Violet, Pete, Tia, Nora, Teri, Casey, Joey, Natasha, Brendan, Jackson, Nadina, Myra, Jason, Kate, Colin.

Thanks also to other researchers and staff who contributed to this project, including Madison Wynn, Amy Amessoudji, Jake Nitzkin; Jonathan Bullock, Dexter Borrowman, Felipe Dest, Sara Flores from Kaiser Permanente; and Peter Mendel, from the Rand Corporation, USA.

Special thanks to The Health Experience Research Group (HERG) at Oxford University’s Nuffield Department of Primary Care Health Sciences, and Louise Locock, University of Aberdeen, for conceiving of Catalyst films and providing guidance during our process of making this one.

Thanks to Tarazod Films and Media LLC for video editing.

TOOLKIT CITATIONS

Guidebook: Davis S, Pandhi N, Crowder, M, Grevious, N., Ingersoll, H., Warren, B, Perry, E., Sussman, A, Grob, R, Patient Experiences Catalyst Film Guidebook, Center for Patient Partnerships, University of Wisconsin-Madison, University of New Mexico School of Medicine, Family & Community Medicine, UW-Madison Institute for Clinical & Translational Research, Health Experiences Research Network, and the UW Health Innovation Program; 2020. Available at: healthexperiencesusa.org/catalystfilms

Film: Davis S, Pandhi N, Crowder, M, Grevious, N., Ingersoll, H., Warren, B, Perry, E., Sussman, A, Grob, R, Young Adults’ Experiences With Depression: A Catalyst Film. Center for Patient Partnerships, University of Wisconsin-Madison, University of New Mexico School of Medicine, Family & Community Medicine, UW-Madison Institute for Clinical & Translational Research, Health Experiences Research Network, and the UW Health Innovation Program; 2020. Available at: healthexperiencesusa.org/catalystfilms

ABOUT THE AUTHORS

Sarah Davis, JD, MPA (she/her) is Co-Director of the Center for Patient Partnerships and a Clinical Professor in the University of Wisconsin Law School. She collaborates on research, program, and policy efforts to enhance the responsiveness of health and legal systems to consumers' experiences and to health harming social and legal needs, including LIFT Dane.

Nancy Pandhi, MD, MPH, PhD (she/her) is an Professor in the University of New Mexico Department of Family and Community Medicine. Her research program is directed towards effective ambulatory care redesign for vulnerable populations, with a focus on understanding the patient perspective.

Njeri Grevious, BS, (she/her & they/them) serves on the Health Experiences Research Network (HERN) Steering Committee. leading several initiatives and groups, most notably co-leading the Patient Consumer Advisory Council. and serves on the advisory boards of several arts institutions including Anikaya Dance Theater and Winsor Music. Njeri graduated Yale in 2017 (applied mathematics/biomedical engineering) and currently works in Data Engineering at Goldman Sachs.

Haley Ingersoll, MSW, (she/her) is a recent graduate from the University of Wisconsin - Madison Master of Social Work program and a policy fellow with the Network for Social Work Management. In her career and personal life, she maintains a dedication to health advocacy, care improvement, and social policy efforts.

Barbara Warren, Psy.D., CPXP (she/her) is the Director for LGBT Programs and Policies in Mount Sinai’s Office for Diversity and Inclusion and an Assistant Professor of Medical Education at Mount Sinai Health System, where she leads its implementation of LGBT competent health care. She has over 40 years of experience in health promotion programs in community-based settings and over a decade of experience on national and international consumer advisory groups. She serves on the HERN Steering Committee.

Elizabeth Perry, MD, is a Clinical Associate Professor in the Department of Family and Community Medicine at the University of Wisconsin-Madison. She participates in leadership in behavioral health integration at UW Health.

Madison Crowder, BS, is pursuing her doctorate degree in clinical psychology at Xavier Univeristy. She collaborates on research related to patients' experiences with health and the effective redesign of primary health care.

Andrew Sussman, PhD, MCRP, is a Professor in the Department of Family and Community Medicine at the University of New Mexico School of Medicine. He is a medical anthropologist and his research has focused on primary health care service delivery and patient-provider counseling dynamics among medically underserved populations in New Mexico.

Rachel Grob, MA, PhD, (she/her) is Director of National Initiatives and Clinical Professor at the Center for Patient Partnerships. She is also Senior Scientist in the University of Wisconsin – Madison Department of Family Medicine and Community Health. Dr. Grob’s career has been devoted to investigating patients’ experiences with health, and to involving them in the discourse, processes and institutional arrangements which impact health care.

©2019 Health Experiences Research Network