HealthExperiencesUsa.org brings patients’ voices to American health care. We seek to describe the widest possible range of individual experiences from the patient’s point of view. HealthExperiencesUsa.org is a non-commercial, non-profit group, part of an international movement (DIPEx International) to provide a place for sharing patients’ stories.
"I have battled with depression for most of my life, and like the idea of being able to help others who have suffered this illness with my own story."Health Experiences Participant"It's a move from anecdote to science. We need to do it with the assurance that we're not just collecting the outlier story, but rigorously collecting the full diversity of patient experiences and representing them responsibly."Rachel Grob, PhD, University of Wisconsin-Madison"Listening to other people's stories was always helpful for me… And I just kind of wanted to contribute to that… I just thought it would be really cool to be a part of that."Health Experiences Participant"You're getting the feel of someone, instead of just seeing their words on paper. There's a richness you can get."Erika Cottrell, PhD, Oregon Health & Science University"If the interview is helpful to others, it’s helpful to me. I hope it helps at least one person realize they are not alone."Health Experiences Participant"Patient experiences—if we know how to listen to them—are a nuanced and very robust form of data that need to be handled with respect and expertise."Rachel Grob, PhD, University of Wisconsin-Madison"One of the things that helps me is other people’s stories, and I just want to help them too."Health Experiences Participant"The primary aim of DIPEx is to describe the widest practicable range of individual experiences from the patients' points of view."Andrew Herxheimer, Sue Ziebland, DIPEx International"I want my experiences to help other people, even if it’s just one person."Health Experiences Participant"Delivering patient-centered care requires putting the patient rather than the clinician at the center of the care process."David Atkins, MD, MPH, Department of Veterans Affairs"Patients telling their story have a sense of altruism and solidarity with others. We have been struck by how they feel more part of the community in sharing their story; some may even gain greater self-understanding and self-esteem."Andrew Herxheimer, Sue Ziebland, DIPEx International"What's really neat is all the secondary uses that come from the data. You do all these interviews, you create this resource for researchers or for patients, but it doesn't just stop there. It lives on and people can use the data again and again, for any number of purposes."Mark Helfand, MD, MPH, Oregon Health & Science University"Personal accounts of the experience of illness provide a particularly potent form of narrative, and one that becomes all the more striking when the reader shares a diagnosis with the author."DIPEx International
Take a look at our first module, “Young Adults’ Experiences of Depression in the U.S.”
Click here to see a video on how to navigate our modules